Edited by: Jennifer L. Hsiao, Vivian Y. Shi

Hidradenitis Suppurativa

Patient Guide

Introduction

A comprehensive patient-oriented high-quality educational resource that allows people with HS and caregivers to access accurate and relevant information about HS. Content includes pathophysiology, clinical presentation, medical and procedural treatments, strategies to optimize HS care, and experiences from people with HS. This book is written in plain language with the goal of making this resource easily readable and understandable. Authors of this book include a team of world renowned HS experts as well as HS patient advocates.

 

From the Editors:

This handbook was created by experts in the field of hidradenitis suppurativa (HS), including scientists, researchers, HS healthcare providers, and people living with HS and their caregivers. Broadly, the goals of this handbook are to share the current knowledge regarding HS, helpful tips regarding HS care, as well as persistent knowledge gaps. This is in order to offer a comprehensive guide for people living with HS, caregivers taking care of a loved one with HS, or anyone wanting to learn more about the condition. The chapters in this book cover relevant topics in HS backed by the most current research. This handbook can serve as a resource for people who are first diagnosed with HS and would like a comprehensive overview of the disease, or for people who have lived with HS for a long time and would like to refer to this book as a reference.

We hope to inspire the global HS community, and all the current stakeholders, to recognize and find solutions to improve outcomes for people living with HS.

The contents of this website are not meant to be a substitute for medical advice. Please consult with your qualified healthcare professional for any health and medically related concerns.


Table of Contents Updated March 23rd, 2023

Section 1: Knowledge gains

Chapter 1: Hidradenitis Suppurativa Overview

Devea. R. De, Terri Shih, Vivian Y. Shi

Chapter 2: Clues You May Have HS

Muskaan Sachdeva, Afsaneh Alavi

Chapter 3: HS Genetics and Inflammation

Emily Kozera, Akshay Flora, John W. Frew

Chapter 4: Contributors to HS Inflammation

Emily Kozera, Akshay Flora, John W. Frew

Chapter 5: HS and Quality of Life

Natalie M. Fragoso, Jennifer L. Hsiao

Chapter 6: HS Associated Diseases

India Robinson, Chelsea Shope, Colleen Cotton

Chapter 7: HS Disease Complications

Jason Gomez, Leandra A. Barnes, Maria Aleshin

Section 2: Special circumstances

Chapter 8: Women with HS: Periods, Pregnancy, and Menopause

Terri Shih, Devea De, Jennifer L. Hsiao

Chapter 9: Children with HS

Andrea L. Zaenglein, Laurie Krnjaic, Irene Lara-Corrales

Section 3: Optimizing your HS care

Chapter 11: Making the Most of Your HS Doctor Visit

Ramie Fathy, Robert G. Micheletti

Chapter 12: HS Treatment Goals

Diana Seaok Kim, Martina Porter

Chapter 13: Multidisciplinary Care

Tiffany T. Mayo, Yonesha Cole, Ginette A. Okoye

Section 4: Non-medication treatments

Chapter 15: Skin and Wound Care

Divya Chopra, Neil Seth, Hadar Lev-Tov

Section 5: Medical treatments

Chapter 17: Antibiotics

Franklin R. Blum, Rishab Revankar, Christopher J. Sayed

Chapter 18: Non-Antibiotic Oral Medications

Surya Veerabagu, Tarannum Jaleel

Chapter 19: Biologics and Small Molecule Immunomodulators

Terri Shih, Devea De, Jennifer L. Hsiao

Chapter 20: Pain Control

Monica N. Williams, Kimberly Curseen, Christine Yannuzzi, and Lauren A.V. Orenstein

Section 6: Procedures

Chapter 21: The Right Surgery for the Right Time

Forrest Roberson, Katherine Jicha, Christopher J. Sayed

Chapter 22: Surgical Excisions

Stephanie R. Goldberg

Chapter 23: Procedures in the Office

Barry I. Resnik, Sydney R. Resnik

Chapter 24: Laser Therapy

Jalal Maghfour, Iltefat H. Hamzavi

Section 7: Resources

Chapter 26: Tracking Your HS

Devea R. De, Terri Shih, Vivian Y. Shi

Chapter 27: Experiences from People Living with HS

Athena Gierbolini, Christine Yannuzzi, Denise Fixsen, Donna Atherton

Chapter 28: Experiences from HS Caregivers

Brindley A. Brooks, Lucas Swihart

Section 8: On the Horizon

Chapter 29: Pipeline Therapeutics for Hidradenitis Suppurativa

Claire Elizabeth Herzog, Rob Leland Shaver, Michelle Anne Lowes, Noah Goldfarb

Chapter 30: The Future of HS

Lindsey Greenlund, Claire Elizabeth Herzog, Michelle Anne Lowes, Noah Goldfarb